Friday, June 12, 2009


Just discovered a saved draft from last week. Thought I'd pass it along. It's still true, so why not? Just a little bit of old news...

I'm am so thankful it's Friday. This has been a busy week! Up early for boot camp, which has been a great release for me lately, then up late with VBS at church. And we haven't even been every night; only 2. But it's made those 2 days very long!

Kevin (DH), has been to VBS more than I have but we all went on Wednesday night. It was great! The team who has organized has really outdone themselves again this year!

That being said, Samuel is too young for VBS :( . He just doesn't understand the games, or even staying with the group he is supposed to be with. I guess there is a reason the youngest kids they register are 5. hmmm...

Without going into too many details, our Wednesday night trip to VBS was cut short. Little guy was very sleepy and had about 3 head bonks too many (again, touching on the point, he's too little - people didn't see him behind doors and plowed him down). So we left. On the way home, while he was resting/recovering, I was thinking about how it will be in a few years when he IS old enough to enjoy VBS along with all the other crumb-cruncher, germ slathered kids there. How will it work when snack time comes around and he has to take enzymes before snack? Am I going to have to provide applesauce and a tutorial on administering meds to my child just before snack time? Maybe he'll have a buddy to help him every night.

All of this reminds me of the book we were given on diagnosis day, talking about experiencing "acute grief" from time to time, like when seeing a chubby baby in the grocery store and grieving that your child has a difficult time getting those chubby thighs. Now, every chubby-thighed child I see, everywhere, brings on those thoughts of "Samuel had chubby thighs for a day or two." I guess VBS brought on some acute grief the other night. 

Anyone else ever experience this? I'm sure other CF Mommees do from time to time. How do you get through it?

1 comment: said...

Just curious what church you go to...I go to Cornerstone in Chandler.

Also, just realize how many things are extraordinary about your son. CF has made me the man that I am today and I consider it a blessing. If handled correctly, CF can provide more positive benefits than negative in my humble opinion.