Thursday, August 7, 2008

Update on Samuel

We took Samuel to PCH today for a follow up visit. He is 28.25 inches long and weighs in at 19 pounds, 9 ounces, just at the 50th percentile. This is a slight problem as the CF team would like to keep his weight up around the 75th percentile. To help pack the pounds back on, we are going to increase his calorie intake by making his milk more concentrate. It's usually 20 calories per ounce; we will make it 24 calories per ounce. Part of the issue is Samuel is sometimes too busy playing to eat so I am going to try to feed him more frequently throughout the day.

Samuel has also been having a problem sitting still long enough for a breathing treatment. It wasn't a problem when he slept most of the time because we could hold a mask to his face for 10 minutes with no problem. Those days are no longer. We are going to use a MDI, or inhaler, along with a spacer to give him the inhaled medicines. This will take much less time than before. He just needs to have the mask to his face for about 1 minute total and should be much more "doable" than before.

Like the last visit, he enjoyed playing with the paper on the table, but was really interested in the cords on the wall. He was too little to understand he was sitting on the back of a hippo but we all agreed one day he will think that is so cool.

The hypertonic saline study has been put on the back burner again for reasons I am not sure of. We were going to wait until Samuel began participating in the study to try to complete his pulmonary function test (PFT a.k.a. IPL) again. However, since we don't know when that will be, we need to do the PFT soon. We will attempt to do this again in about a month, I would guess. We have to go visit everyone in Maryland and Virginia first!

Samuel will go back to PCH in 2 months, which I am sure will feel like 2 weeks. Just think, in 2 months, we will be preparing for his 1 year birthday! But before birthdays and PCH, we go visit his pediatrition on Monday for a well-baby check. Well-baby = shots. Throat cultures at one place, shots at the other...poor little guy. :(

Thanks for checking in. Stay tuned for more updates later.

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